Success StoryLiving with Alpha-Gal Syndrome
Living with Alpha-Gal Syndrome
Author: Carrie Spry
Planning Unit: Clark County CES
Major Program: Horticulture, Consumer and Home
Plan of Work: Promote Health and Wellness
Outcome: Initial Outcome
While still considered “rare” relative to other medical issues in the state, Kentucky is one of the states with the most cases of alpha-gal syndrome in the US, according to the CDC, with some Kentucky counties presenting the highest cases per capita in the country. This condition is developed in some people after a bit from a lone star tick. There is no known treatment for alpha-gal syndrome. Instead, lifestyle changes can be made that help manage and reduce the symptoms. This includes removing all foods from mammalian sources (e.g., beef, pork) as well as ingredients and byproducts derived from mammalian sources. This lifestyle change can seem overwhelming and daunting for those newly diagnosed. Further, tick bite prevention is key in preventing future cases and worsening symptoms in Kentuckians.
To educate Extension clientele about alpha gal syndrome, the Clark County Extension Office hosted an in-person watch party for the Living with Alpha Gal-Syndrome statewide webinar on May 29, 2025. This webinar focused on basic information about alpha gal syndrome, symptoms, diagnosis, nutrition and lifestyle management, as well as tick bite prevention. This webinar was hosted at the state level in response to the growing number of questions and concerns received across Kentucky from growers, producers, farmers, and other clientele. In Clark County, the FCS agent and the Horticulture Agent worked together to host, where 11 people participated in the in-class watch party. One of the participants has AGS and shared his story with the rest. This participant provided great insight and really helped bring al of the points together and made it hit home for everyone.
At the conclusion of the webinar 100% of the participants completed a post-evaluation. Of those surveyed, 100% indicated they could describe alpha-gal syndrome and the common cause, and they now had a better understanding of which foods, ingredients, and products may trigger symptoms. 100% reported they could identify ways to prevent tick bites and that they were more aware of strategies to manage daily life with alpha-gal syndrome. Further, all participants acknowledged they plan to use an identified method for tick bite prevention in the future.
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