Success StoryRaising Awareness: Alpha-Gal Syndrome and Tick Bite Prevention in Greenup County
Raising Awareness: Alpha-Gal Syndrome and Tick Bite Prevention in Greenup County
Author: Linda Hieneman
Planning Unit: Greenup County CES
Major Program: Agriculture and Extension Leadership Development
Plan of Work: Enhancing Life Skills and Building Consumer Awareness
Outcome: Intermediate Outcome
Relevance:
While still considered “rare” relative to other medical issues in the state, Kentucky is one of the states with the most cases of alpha-gal syndrome in the US, according to the CDC, with some Kentucky counties presenting the highest cases per capita in the country. This condition is developed in some people after a bit from a lone star tick. There is no known treatment for alpha-gal syndrome. Instead, lifestyle changes can be made that help manage and reduce the symptoms. This includes removing all foods from mammalian sources (e.g., beef, pork) as well as ingredients and byproducts derived from mammalian sources. This lifestyle change can seem overwhelming and daunting for those newly diagnosed. Further, tick bite prevention is key in preventing future cases and worsening symptoms in Kentuckians.
Response:
To educate Extension clientele about alpha gal syndrome, the Greenup County Extension Office hosted an in-person watch party for the Living with Alpha Gal-Syndrome statewide webinar on May 29, 2025. This webinar focused on basic information about alpha gal syndrome, symptoms, diagnosis, nutrition and lifestyle management, as well as tick bite prevention. This webinar was hosted at the state level in response to the growing number of questions and concerns received across Kentucky from growers, producers, farmers, and other clientele. The Greenup County Agriculture & Natural Resources Agent and the Family & Consumer Sciences Agent partnered to engage the community regarding this prevalent issue in our area. Seven people participated in the in-class watch party and were able to taste several AGS safe recipes, take home an information packet with pertinent information regarding AGS and each receive a tick removal kit. The participants were also educated on how our local extension office can aid with the identification of ticks and provide educational information to those living with Alpha-Gal Syndrome.
Results:
At the conclusion of the webinar seven people completed a post-evaluation. Of those surveyed, 100 % indicated they could describe alpha-gal syndrome and the common cause and 100 % stated they had a better understanding of which foods, ingredients, and products may trigger symptoms. 100 % reported they could identify ways to prevent tick bites, while 100% were more aware of strategies to manage daily life with alpha-gal syndrome. Further, 100 % acknowledged they plan to use an identified method for tick bite prevention in the future.
One participant commented “I am so thankful for this opportunity to connect with a group of people who are also dealing with AGS. For so long I felt unheard by medical professionals on what I was dealing with regarding my health. It is great to see this awareness out there and education on prevention strategies regarding tick bites. Think like a tick!”
Public Value Statement:
By educating Kentuckians about alpha-gal syndrome and tick bite prevention, the Greenup County Extension Office empowers individuals to make informed health and lifestyle decisions, reducing risk and improving quality of life in communities affected by this emerging condition.
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