Success StoryLiving with Alpha-gal Syndrome Webinar
Living with Alpha-gal Syndrome Webinar
Author: Lorie Adams
Planning Unit: Knott County CES
Major Program: Active Living and Health Promotions General
Plan of Work: Healthy Families and Communities
Outcome: Initial Outcome
Describe the Issue or Situation
While still considered “rare” relative to other medical issues in the state, Kentucky is one of the states with the most cases of alpha-gal syndrome in the US, according to the CDC, with some Kentucky counties presenting the highest cases per capita in the country. This condition is developed in some people after a bit from a lone star tick. There is no known treatment for alpha-gal syndrome. Instead, lifestyle changes can be made that help manage and reduce the symptoms. This includes removing all foods from mammalian sources (e.g., beef, pork) as well as ingredients and byproducts derived from mammalian sources. This lifestyle change can seem overwhelming and daunting for those newly diagnosed. Further, tick bite prevention is key in preventing future cases and worsening symptoms in Kentuckians.
Describe the Outreach or Educational Program Response (and Partners, if applicable)
To educate Extension clientele about alpha gal syndrome, the Knott County Extension Office hosted an in-person watch party for the Living with Alpha Gal-Syndrome statewide webinar on May 29, 2025. This webinar focused on basic information about alpha gal syndrome, symptoms, diagnosis, nutrition and lifestyle management, as well as tick bite prevention. This webinar was hosted at the state level in response to the growing number of questions and concerns received across Kentucky from growers, producers, farmers, and other clientele. FCS and ANR Agents hosted clientele in the in-class watch party at the Knott County Extension Office. Several clients came from Perry County, who did not have a watch party. Agents were available to answer questions. Each family was given a tick kit and several recipes that were alpha gal approved were sampled.
Provide the Number and Description(s) of Participants/Target Audience
Knott County hosted 14 community members who all had an interest in tick prevention and the alpha-gal syndrome.
Provide a Statement of Outcomes or Program Impact. Please note that the outcomes statement must use evaluation data to describe the change(s) that occurred in individuals, groups, families, businesses, or in the community because of the program/outreach
At the conclusion of the webinar, fourteen people completed a post-evaluation. Of those surveyed, 100% indicated they could describe alpha-gal syndrome and the common cause and 100% stated they had a better understanding of which foods, ingredients, and products may trigger symptoms. 100% reported they could identify ways to prevent tick bites, while 100% were more aware of strategies to manage daily life with alpha-gal syndrome. Further, 100% acknowledged they plan to use an identified method for tick bite prevention in the future.
As a result of the program, 25% have used their tick kits and brought a tick to be sent to UK. 100% stated they were more aware going outside after the program and our office has had numerous requests for alpha-gal approved recipes.
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