While still considered “rare” relative to other medical issues in the state, Kentucky is one of the states with the most cases of alpha-gal syndrome in the US, according to the CDC, with some Kentucky counties presenting the highest cases per capita in the country. This condition is developed in some people after a bite from a lone star tick. There is no known treatment for alpha-gal syndrome. Instead, lifestyle changes can be made that help manage and reduce the symptoms. This includes removing all foods from mammalian sources (e.g., beef, pork) as well as ingredients and byproducts derived from mammalian sources. This lifestyle change can seem overwhelming and daunting for those newly diagnosed. Further, tick bite prevention is key in preventing future cases and worsening symptoms in Kentuckians.

To educate Extension clientele about alpha-gal syndrome, the Fayette County Extension Office hosted an in-person watch party for the Living with Alpha-Gal Syndrome statewide webinar on May 29, 2025. This webinar focused on basic information about alpha-gal syndrome, symptoms, diagnosis, nutrition and lifestyle management, as well as tick bite prevention. This webinar was hosted at the state level in response to the growing number of questions and concerns received across Kentucky from growers, producers, farmers, and other clientele.

Horticulture and Agriculture agents collaborated with the Supplemental Nutrition Education Program (SNAP-Ed) program assistant to provide a food demonstration and tasting of Alpha-Gal appropriate foods. A free tick removal kit was also provided for every attendee. Ten people participated in the watch party. 38% of participants shared that they or someone in their household had been diagnosed with Alpha-Gal Syndrome.

At the conclusion of the webinar 8 people completed a post-evaluation. Of those surveyed, 50% were not familiar with the disease prior to the event. All participants indicated that the information presented was practical to them and they increased their knowledge about the disease, what causes it and ways to prevent getting the disease. Additionally, all participants claimed they increased their knowledge about managing daily life with alpha-gal syndrome such as which foods, ingredients and products may or may not trigger symptoms of the disease. While all participants shared that they became more aware of strategies to manage daily life with alpha-gal syndrome, 88 % acknowledged they plan to use an identified method for tick bite prevention in the future.

Altogether the event was very well received and appreciated. Several attendees traveled from other counties in order to view the webinar live. There were many accolades provided for the food demo portion of the event and the recipes provided. All participants surveyed indicated they would like to receive additional programming related to these topics.