Relevance: 

While still considered “rare” relative to other medical issues in the state, Kentucky is one of the states with the most cases of alpha-gal syndrome in the US, according to the CDC, with some Kentucky counties presenting the highest cases per capita in the country. This condition is developed in some people after a bit from a lone star tick. There is no known treatment for alpha-gal syndrome. Instead, lifestyle changes can be made that help manage and reduce the symptoms. This includes removing all foods from mammalian sources (e.g., beef, pork) as well as ingredients and byproducts derived from mammalian sources. This lifestyle change can seem overwhelming and daunting for those newly diagnosed. Further, tick bite prevention is key in preventing future cases and worsening symptoms in Kentuckians.

Response: 

To educate Extension clientele about alpha gal syndrome, the Nicholas County Extension Office hosted an in-person watch party for the Living with Alpha Gal-Syndrome statewide webinar on May 29, 2025. This webinar focused on basic information about alpha gal syndrome, symptoms, diagnosis, nutrition and lifestyle management, as well as tick bite prevention. This webinar was hosted at the state level in response to the growing number of questions and concerns received across Kentucky from growers, producers, farmers, and other clientele. Together the Nicholas County Agriculture and Natural Resources agent, Shelby Cleaver, and Family and Consumer Sciences agent, Ashley Vice hosted a watch party at the Nicholas County Livestock Barn and Pavilion to join participants across the state in becoming informed about Alpha Gal and it’s effects. Seven people participated in the in-class watch party.

Results: 

At the conclusion of the webinar 5 people completed a post-evaluation. Of those surveyed, 100 % indicated they could describe alpha-gal syndrome and the common cause and 100 % stated they had a better understanding of which foods, ingredients, and products may trigger symptoms.  100 % reported they could identify ways to prevent tick bites, while 100% were more aware of strategies to manage daily life with alpha-gal syndrome. Further, 100% acknowledged they plan to use an identified method for tick bite prevention in the future.

Recognizing the low turnout numbers at the watch party on May 29^th, agents Shelby Cleaver and Ashley Vice realized many community members are not informed about the prevalence of alpha gal. Using this realization, agents partnered with Sterling Health and the opportunity to participate in a Community Health Fair on June 23^rd. At the Nicholas County Cooperative Extension Booth, agents distributed University of Kentucky developed information sheets about Alpha Gal and also gave out a sheet of different SNAP eligible recipes for those that may have loved ones or their self with Alpha-Gal to have safe but healthy meals. Of the 34 people who visited the booth and received information, as well as engaged in discussion, only 2 had heard of Alpha Gal as a new and more prevalent issue.

Public Value Statement: 

By educating Kentuckians about alpha-gal syndrome and tick bite prevention, the Nicholas County Extension Office empowers individuals to make informed health and lifestyle decisions, reducing risk and improving quality of life in communities affected by this emerging condition.